It’s been 3 months since Theo’s last MRI. Usually, Ted and I would be a couple weeks into our mode of preparing for the next scan – feeling a little tense and on-edge and kind of going through the motions, all while really trying to live in the moment and appreciate life. Not this time! After his MRI in February, Theo’s doctors said he didn’t have to come back for 6 whole months!
What seems crazy is that I didn’t have any sense of this time passing. I don’t know how to explain it, but for a long time I have been living from MRI to MRI. I don’t know if it’s a sense of comfort in Theo’s continued health and progress, or the addition of our sweet Eli, or both, but time is passing differently now. I feel sure the nervousness and fear will always lurk in my mind, but I feel at ease in my heart – hopeful about Theo, Ad, and Eli being happy, healthy, and safe, and living to be old people with fulfilled lives.
Ted pointed out that Theo seems to be aware of this on some level, too. He is definitely a serious kid much of the time, but recently he has been Mr. Giggles! I’ve always felt that Theo has an appreciation for life – he moves at a pace that allows him to take everything in, he always wants to explore, and he has so much love for those who are lucky enough to know him. But I’m telling you, the way he has been laughing recently would warm the coldest heart!
What I would love is for our kids to forever feel the joy that they show us right now. My feeling is that it’s our responsibility to show them how by living our lives in that way. So help me out - how do you truly live in the moment and fully embrace life without kind of abandoning responsibility (I can sooo relate to the quotes about a messy house having happy kids)? I feel like balance is the answer, but I’m just not always sure what that means. I’m always aiming for balance and perspective but, man, it’s difficult sometimes! Seriously, if you’ve got answers, fill me in!
I guess we’ll figure these things out as we go. For now, I’ll just bask in the glory of my 3 healthy, joyful, inspiring beauties.
Wednesday, May 7, 2014
We all had a great time in Washington, DC this past Sunday at the Race for Hope! Theo walked across the finish line without his walker, which goes to show how much progress he's made over the past year. We are so proud of this little fighter!!!
Thank you to everyone that joined us in the walk and/or made donations in Theo's name...we appreciate your support more than you know!
Posted by Thinking of Theo at 9:24 PM
Thursday, April 24, 2014
Tuesday, April 22, 2014
On May 1, 2014 we will be having a Spirit Dine at Chick-Fil-A in Forest Hill. The flyer below will need to be presented in some form (paper, photo, or just show them your phone) when you order. You can dine in, carry out or drive thru as many times as you like, all day long and up to 20% of the proceeds will go to Team Thinking of Theo! Please share this flyer with as many people as possible!
To learn more about Team Thinking of Theo or to make a donation, please check out the Team Page: Team Thinking of Theo - 2014 Race for Hope
Posted by Thinking of Theo at 12:07 PM
Friday, February 7, 2014
Theo had another good MRI yesterday! His doctor said it looks "stone cold normal...well, stone cold Theo normal". That once-concerning spot remains where it is, unchanged, and no longer concerning.
I felt oddly relaxed during the waiting game yesterday. Then I got nervous because I wasn't nervous...ah, the crazy. I often say I don't want to get too comfortable with the idea that Theo is, and will continue to be, healthy...because I'm scared that it could change. But I also feel confident about his future and I no longer feel nervous about planning ahead.
Theo reminds me all the time how amazing he is. I feel like he's doing new, exciting things all the time, and he is so, so fun to be around. It's difficult not to get caught up in the day to day, but I make an effort to always keep in mind that he, Addie and Eli are incredible gifts.
On another note, we are looking forward to participating in the Race for Hope-DC for the second time on May 4th! If you'd like to celebrate with us by joining our team or making a donation, please visit our team page by clicking here.
Posted by Thinking of Theo at 6:33 PM
Tuesday, January 14, 2014
It seems like every time we go to post, we find ourselves snoozing. After a little trip to Florida, Theo and Addie (and Grumpy Bear) had a nice long nap.
All is well with our buddy. I'm sure Mom and Dad will have an better update soon.
Sorry for our lack of posts, but know we appreciate all the continued support.
Posted by Thinking of Theo at 6:43 PM
Thursday, November 28, 2013
When Theo was first hospitalized, a group of longtime family friends collected books to send to Theo in the hospital. Each book had a special message written to Theo and he’s been enjoying them ever since. Today before naptime, Theo chose to read a set of books in which the message is a poem written by someone who can absolutely relate to Theo’s fight (she has been graceful and strong in her fight, too, and she’s doing wonderfully). I feel like today, Thanksgiving, is a good day to share this with you, too:
Your beautiful eyes, so big and bright
Light up a room, in day or night.
Your smile is contagious, even without a sound
Showing how much you feel love from all around.
For you are loved by so many more than you know
From the top of your head to your perfect little toes.
You’ve touched hearts and made a difference here
Through all the smiles, tears, hopes and fears.
I pray and know that God holds your hand
As you hold our hearts, you precious little man.
We continue to be amazed by our little man. He is cute, sweet, smart, funny, strong and fiercely determined. He’s my best big boy and I’m thankful for him, his sister and brother, and Dada every second of every day. My husband and our beautiful children bring more joy to my life than I could ever explain. I hope you feel that joy in your life, too.
Posted by Thinking of Theo at 3:40 PM